So, yesterday was the Digital Flu clinic at Seascale Health Centre, in West Cumbria. 392 people came through the centre during the day to get their annual flu jabs. 40 of these signed up to access their health records online for the first time, and 20 or so of them came to see me to get advice on their digital lives.
And there is the rub, and it’s why we were doing this really. Getting nearly 400 people in one place on one day is a rare opportunity in such a sparsely populated part of the country. The fact that such a small proportion of them wanted advice on digital issues shows the scale of the challenge. And it was not because they were sorted for that kind of thing. I engaged a lot of people in conversation about use of the internet. The vast majority of them said things like “I don’t do the internet”, or “I am not interested in that kind of thing”. They were mainly older people, and most of them live in areas where both landline and mobile signals are poor. This is a combination of factors which combines to produce a lack of awareness of the benefits of being online. And, in the cases where connectivity is poor, even if they are willing, they probably won’t be able to pursue their interest.
But, we always knew this was not going to be easy. This event is the start of a process. The surgery wants to interact with people online, to help people manage their health through apps and online processes, and to cut down social isolation by connecting people together. I also met with Councillor Keith Hitchen who talked about the frustrations of carers having to travel long distances to meet and attend events. The traveling cuts into the respite time they have, and they often have to miss large parts of events because of the time it takes to get to and from the venue. Online events and other interactions would be so valuable in these instances.
So, there are a number of strands we will be pursuing in the coming weeks, including looking at ways of tackling connectivity issues, working out the most cost-effective ways of ensuring that people can get independent advice on their digital needs, and working with local organisations to upskill them in areas such as video-conferencing and streaming meetings.
I’ll leave the last word to the couple I talked to about their use of FaceTime. “Do you use it to talk to family abroad?” I asked them. “Yes, only last night we used it to see our newly-born 6th grandchild in Toronto” they said. Don’t you dare try to tell me (or them) that new technologies are de-humanising.
This Saturday (7th October) I will be undertaking what I think is another first, a Digital Flu Clinic. What’s that, I hear you ask?
Well, I’ll be working with Seascale Health Centre in Cumbria to provide digital advice to the people who come to the Flu Clinic there this weekend. Like most parts of the health infrastructure, the Health Centre is keen to encourage its patients to take up online health services and use health apps. Many of its patients are older, and that applies particularly to those who are eligible for annual flu jabs. These patients are less likely to be using online services, particularly as broadband and mobile connectivity are poor in the area.
Seascale Health Centre covers an area of some 350 square miles which has a population only of around 5,500. 450 people are booked into the Flu Clinic, so this is a rare opportunity in such a sparsely populated area to get such a large group of people together in one place. And it is an added bonus that most of the 450 will be older people.
I am really looking forward to helping people to get to grips with the issues holding back their digital lives. Solving those issues will have much wider benefits in their lives than simply interacting with health services. I also think we have hit upon a concept that could be replicated elsewhere. Who else is up for a Digital Flu Clinic?
I need to get this off my chest.
I couldn’t possibly count the number of times people have given me the excuse for not pursuing digital transformation that recipients of services would miss the personal touch. Indeed I am repeatedly told that, for many the regular interaction with their care worker / housing officer / other professional is their only human contact.
I have 2 responses to this argument.
The first is, why are we not making more use of technology to reduce isolation and increase human contact? First priority in this for me is to assist people to use social networking to make new friends who they can subsequently meet in person. Second priority is to connect people together online, whether it be via social media sites, or via video conferencing.
My second response is this. What has our society come to if the only personal contact people have is with those who are paid to deliver a service to them? This is not right and it should not be used as an excuse for holding back progress. I refer you back to my first response for how we should be dealing with this. Let’s help people make and maintain real friendships, not rely on perfunctory transactions for a semblance of human warmth.
Here’s Paro the robot seal which has proven really good at connecting with older people.
Last week I was working at the 2nd North Wales Dementia Meetup (#DementiaNWales). I will blog more about that when I get a chance, and there will be a lot of video content to catch up with soon. But, in the mean time…
I ran a couple of sessions about using technology to make life easier for people with Dementia. In one of the sessions there was an appeal to find a Dementia-friendly group video conferencing app so people can keep in touch with each other.
Personally, I think it must be the case that something suitable already exists. A few months ago I would have confidently said that I think Blab is the one. But then Blab was closed down.
So, is there one that exists, or do we need to invent it? Google Hangouts has been significantly simplified in recent months, but still, when I tried to use it with a group with low levels of digital skills, the majority struggled to access it. Another candidate is HouseParty, an app recently launched by the founders of the demised live streaming app, Meerkat. Would either of these do the job? Or, of course, there is always Skype, tried and trusted to many now, and offering group video chat as a relatively recent development.
I’d be very interested in people’s views (please leave a comment below) on what the issues are for people with Dementia in accessing group video chat, and whether any of the apps I have suggested might do the job, or does the perfect tool need to be created?
Another in my series of interviews with older people on how they use new technologies. This is a piece of work commissioned by the Centre for Ageing Better. I’d like to thank Barbara’s daughter, Bridget Aherne, for arranging this interview.
Some of the things Barbara told me:
- Barbara is still working; for an NHS GP;
- She was sent on a computer course by her employer and gained an ECDL (European Computer Driving Licence) Certificate;
- Barbara has had a mobile phone since the 1990s when her daughters insisted she get one for her personal safety;
- She teaches dancing and is now using music on her phone for this purpose rather than CDs;
- Barbara communicates online with people in the USA, Canada, Australia, and Ireland;
- She believes emails are much easier and cheaper than letters;
- Barbara is part of the UK Irish community and keeps in touch online with many different groups;
- She is contributing to a blog about the Irish experience of the First World War;
- She is often frustrated by the computers she uses at work, they freeze often;
- Barbara has frequently to help patients at the surgery where she works to use the self-checkin system;
- She loves sharing family photos online using One Drive and Dropbox;
- Barbara is concerned that her technophobic husband will lose out when Radio Eireann ceases broadcasting on Long Wave;
- She loves internet banking as she can see exactly where her money is going, and she does online banking for some of the groups she is involved with;
- Barbara does some of her shopping online;
- She uses the internet to keep an eye on events in her husband’s home town in Ireland.
This is another post about a great event I was fortunate enough to be part of in late November last year.
The Dementia North Wales event was truly inspirational as it gave a voice to people living with dementia. People with dementia were in the room contributing to the discussions and helping to design solutions, and people with dementia were the platform recounting their experiences, and detailing how their condition affected their lives, as well as describing their frustrations with the professionals who often failed to treat them in sympathetic ways.
And here’s the overview video I produced of the day, which I hope captures at least a little of the uplifting mood of the day
This is a much delayed post that I have been trying to get around to writing for some time.
Back in February, I attended a showcase event run by Age Friendly Leeds, under the auspices over the multi-talented Abhay Adhikari. There were a number of products on show, but two in particular caught my eye.
The first was the “bus beacon”. This is a device, based on a raspberry pi which takes the live data on bus times which feeds the displays on bus stops and passes it to a simple clock which counts down the time until the next bus is due at the nearest stop. This is intended to allow people to wait longer in the warmth of their home rather than going out in the cold to wait at the stop.
The second device was the “mesh box”.
These are basically a raspberry pi in a box. Externally, there is just one simple button on box. Pressing this button allows anyone with a box to talk to anyone else in the vicinity with one. They connect to each other via a mesh (hence the name) rather than relying on the internet, so the person using one does not need an internet connection. The idea is that people can talk to their neighbours whenever they feel in company. The boxes do have on/off switches, so people do not have to receive if they don’t want to be disturbed.
What I really love about these devices is their simplicity. They hide the technology and present interfaces which anyone who is anyway frightened of digital devices is likely to feel comfortable with.
I look forward to hearing about progress with these items. If you want to find out more, try giving Age Friendly Leeds a shout.
Today I attended the first We Nurses Get Together (#wtg16). It was a great event to be present at, and I’d just like to congratulate everyone involved in making it happen.
During the afternoon I was part of a group that were looking at developing enabling social media policies. Quite a few of the members of the group expressed their frustration that their organisations were still frightened of social media and were blocking staff from using it at work. We explored why this was the case, and management fears of people saying the wrong things and causing a scandal were pretty high on the list.
And yet, one of the group was from Morecambe Bay NHS Trust, an organisation which has experienced more than its fair share of scandal, none of it social media-related. And as part of this Trust’s fight back from its dire position, it is now encouraging all its staff to be active on social media, and to tell their stories about the good work they are doing.
So, there is a real contradiction here. Those organisations which have not experienced scandal are preventing their staff from accessing social media in case they cause one; whereas the organisation that has been through scandal encourages its staff to be open and transparent. This is because they recognise that their staff are their greatest asset and that, by using social media, they can harness their individual and collective voices to place the good work the Trust does before the public. As I said in the session; too many organisations claim their staff are their greatest asset while treating them as if they are a liability. If you really want to get the best out of your staff you need to give their voice free reign, and turn them all into ambassadors for your organisation.
I think this is a really powerful argument to put forward to any managers who are still being reluctant to let their staff use social media. Tell them to consider what is the worst that can happen if someone makes a mistake on social media and could it be worse than any of the things that happened at Morecambe Bay. In the scheme of things, scandals caused by people’s actions on social media are few and far between, but the positive stories of hardworking people wanting to make a difference are many, and they deserve to be told.
Please get in touch if I can help you develop your social media strategy.
Not long before Christmas I had the pleasure of working with Fran O’Hara and Pam Luckock of Working With Not To social reporting and videoing at their Dementia Co-Production event in Llandudno.
It was a truly inspirational event, and I was very glad to play my part in helping people to get their own stories about living with their own Dementia and that of their loved ones out to the wider world. It was a really illuminating day, and it demonstrated that it is a much more effective methodology to get people to tell their own stories rather than giving the floor solely to the opinions of professionals. The material from the day is still in production, but I have taken the opportunity to present some snippets within this post.
I believe that the power of the internet to bring people with similar issues together, and the availability of digital tools to enable people to tell their stories are powerful mechanisms for assisting people to take control of their own health, influence their treatments, and increase understanding of the development of conditions. And it is true that, in some cases, digital inclusion is an issue in this respect as people need to be introduced to the internet and its possibilities, before it becomes a tool to improve their health and wellbeing.
I’ve got previous experience of this when I worked with Clinical Commissioning Groups in South and East Cheshire to collect some patient stories.
There is not enough of this kind of thing happening in my opinion. So I now want to organise a national event on this issue, i.e. Digital Storytelling for Health and Wellbeing. Please contact me (firstname.lastname@example.org) if you want to be involved in this event, either as a service user, a health and care professional, a storyteller, or a technologist. Let’s build a movement which gets people’s health stories out to the world.
Our ageing population, plus some other factors, has placed a heavy strain on the UK’s social care system. And it has become increasingly apparent that a particular facet of this strain has been the lack of men prepared to work in frontline caring roles. It is not always the case, but in many instances people prefer to be cared for by somebody of the same gender, especially when that care is intimate in nature.
As you will know, I am passionate about storytelling as a device for influencing behaviour and shedding light on neglected issues. So I have teamed up with the National Care Forum and Skills for Care to begin some work on collecting and disseminating stories from men who work in caring roles. We will be helping them describe what they get out of their work, set out pathways into the professions and progression routes through them, and communicate the reasons why more men are needed in the sector.
Next Monday, January 18th, we will be gathering at Skills for Care’s London office to interview a number of men on camera. If you would like to be part of this day, please get in touch. But there are other ways of collecting stories, and, if you would like to tell your tale, but can’t get there next week, get in touch any way, and I’ll talk to you about other ways you can contribute.
Please help with this worthwhile initiative in whatever way you can.