Friendships not Transactions

I need to get this off my chest.

I couldn’t possibly count the number of times people have given me the excuse for not pursuing digital transformation that recipients of services would miss the personal touch. Indeed I am repeatedly told that, for many the regular interaction with their care worker / housing officer / other professional is their only human contact.

I have 2 responses to this argument.

The first is, why are we not making more use of technology to reduce isolation and increase human contact? First priority in this for me is to assist people to use social networking to make new friends who they can subsequently meet in person. Second priority is to connect people together online, whether it be via social media sites, or via video conferencing.

My second response is this. What has our society come to if the only personal contact people have is with those who are paid to deliver a service to them? This is not right and it should not be used as an excuse for holding back progress. I refer you back to my first response for how we should be dealing with this. Let’s help people make and maintain real friendships, not rely on perfunctory transactions for a semblance of human warmth.

Here’s Paro the robot seal which has proven really good at connecting with older people.

Dementia-Friendly Group Video-Conferencing?

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Last week I was working at the 2nd North Wales Dementia Meetup (#DementiaNWales). I will blog more about that when I get a chance, and there will be a lot of video content to catch up with soon. But, in the mean time…

I ran a couple of sessions about using technology to make life easier for people with Dementia. In one of the sessions there was an appeal to find a Dementia-friendly group video conferencing app so people can keep in touch with each other.

Personally, I think it must be the case that something suitable already exists. A few months ago I would have confidently said that I think Blab is the one. But then Blab was closed down.

So, is there one that exists, or do we need to invent it? Google Hangouts has been significantly simplified in recent months, but still, when I tried to use it with a group with low levels of digital skills, the majority struggled to access it. Another candidate is HouseParty, an app recently launched by the founders of the demised live streaming app, Meerkat.  Would either of these do the job? Or, of course, there is always Skype, tried and trusted to many now, and offering group video chat as a relatively recent development.

I’d be very interested in people’s views (please leave a comment below) on what the issues are for people with Dementia in accessing group video chat, and whether any of the apps I have suggested might do the job, or does the perfect tool need to be created?

Capturing Older People’s Technology Stories – Barbara’s Story

 

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Another in my series of interviews with older people on how they use new technologies. This is a piece of work commissioned by the Centre for Ageing Better. I’d like to thank Barbara’s daughter, Bridget Aherne, for arranging this interview.

Some of the things Barbara told me:

  • Barbara is still working; for an NHS GP;
  • She was sent on a computer course by her employer and gained an ECDL (European Computer Driving Licence) Certificate;
  • Barbara has had a mobile phone since the 1990s when her daughters insisted she get one for her personal safety;
  • She teaches dancing and is now using music on her phone for this purpose rather than CDs;
  • Barbara communicates online with people in the USA, Canada, Australia, and Ireland;
  • She believes emails are much easier and cheaper than letters;
  • Barbara is part of the UK Irish community and keeps in touch online with many different groups;
  • She is contributing to a blog about the Irish experience of the First World War;
  • She is often frustrated by the computers she uses at work, they freeze often;
  • Barbara has frequently to help patients at the surgery where she works to use the self-checkin system;
  • She loves sharing family photos online using One Drive and Dropbox;
  • Barbara is concerned that her technophobic husband will lose out when Radio Eireann ceases broadcasting on Long Wave;
  • She loves internet banking as she can see exactly where her money is going, and she does online banking for some of the groups she is involved with;
  • Barbara does some of her shopping online;
  • She uses the internet to keep an eye on events in her husband’s home town in Ireland.

Dementia North Wales – The People Know Best

This is another post about a great event I was fortunate enough to be part of in late November last year.

The Dementia North Wales event was truly inspirational as it gave a voice to people living with dementia. People with dementia were in the room contributing to the discussions and helping to design solutions, and people with dementia were the platform recounting their experiences, and detailing how their condition affected their lives, as well as describing their frustrations with the professionals who often failed to treat them in sympathetic ways.

And here’s the overview video I produced of the day, which I hope captures at least a little of the uplifting mood of the day

Sometimes it’s better to hide the technology

This is a much delayed post that I have been trying to get around to writing for some time.

Back in February, I attended a showcase event run by Age Friendly Leeds, under the auspices over the multi-talented Abhay Adhikari. There were a number of products on show, but two in particular caught my eye.

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The first was the “bus beacon”. This is a device, based on a raspberry pi which takes the live data on bus times which feeds the displays on bus stops and passes it to a simple clock which counts down the time until the next bus is due at the nearest stop. This is intended to allow people to wait longer in the warmth of their home rather than going out in the cold to wait at the stop.

The second device was the “mesh box”.

Mesh Box These are basically a raspberry pi in a box. Externally, there is just one simple button on box. Pressing this button allows anyone with a box to talk to anyone else in the vicinity with one. They connect to each other via a mesh (hence the name) rather than relying on the internet, so the person using one does not need an internet connection. The idea is that people can talk to their neighbours whenever they feel in company. The boxes do have on/off switches, so people do not have to receive if they don’t want to be disturbed.

Mesh box

What I really love about these devices is their simplicity. They hide the technology and present interfaces which anyone who is anyway frightened of digital devices is likely to feel comfortable with.

I look forward to hearing about progress with these items. If you want to find out more, try giving Age Friendly Leeds a shout.

Let your staff be your ambassadors – a takeway from #wgt16

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Today I attended the first We Nurses Get Together (#wtg16). It was a great event to be present at, and I’d just like to congratulate everyone involved in making it happen.

During the afternoon I was part of a group that were looking at developing enabling social media policies. Quite a few of the members of the group expressed their frustration that their organisations were still frightened of social media and were blocking staff from using it at work. We explored why this was the case, and management fears of people saying the wrong things and causing a scandal were pretty high on the list.

And yet, one of the group was from Morecambe Bay NHS Trust, an organisation which has experienced more than its fair share of scandal, none of it social media-related. And as part of this Trust’s fight back from its dire position, it is now encouraging all its staff to be active on social media, and to tell their stories about the good work they are doing.

So, there is a real contradiction here. Those organisations which have not experienced scandal are preventing their staff from accessing social media in case they cause one; whereas the organisation that has been through scandal encourages its staff to be open and transparent. This is because they recognise that their staff are their greatest asset and that, by using social media, they can harness their individual and collective voices to place the good work the Trust does before the public. As I said in the session; too many organisations claim their staff are their greatest asset while treating them as if they are a liability. If you really want to get the best out of your staff you need to give their voice free reign, and turn them all into ambassadors for your organisation.

I think this is a really powerful argument to put forward to any managers who are still being reluctant to let their staff use social media. Tell them to consider what is the worst that can happen if someone makes a mistake on social media and could it be worse than any of the things that happened at Morecambe Bay. In the scheme of things, scandals caused by people’s actions on social media are few and far between, but the positive stories of hardworking people wanting to make a difference are many, and they deserve to be told.

Please get in touch if I can help you develop your social media strategy.

Digital Storytelling for Health and Wellbeing

Not long before Christmas I had the pleasure of working with Fran O’Hara and Pam Luckock of Working With Not To social reporting and videoing at their Dementia Co-Production event in Llandudno.

It was a truly inspirational event, and I was very glad to play my part in helping people to get their own stories about living with their own Dementia and that of their loved ones out to the wider world. It was a really illuminating day, and it demonstrated that it is a much more effective methodology to get people to tell their own stories rather than giving the floor solely to the opinions of professionals. The material from the day is still in production, but I have taken the opportunity to present some snippets within this post.

I believe that the power of the internet to bring people with similar issues together, and the availability of digital tools to enable people to tell their stories are powerful mechanisms for assisting people to take control of their own health, influence their treatments, and increase understanding of the development of conditions. And it is true that, in some cases, digital inclusion is an issue in this respect as people need to be introduced to the internet and its possibilities, before it becomes a tool to improve their health and wellbeing.

I’ve got previous experience of this when I worked with Clinical Commissioning Groups in South and East Cheshire to collect some patient stories.

There is not enough of this kind of thing happening in my opinion. So I now want to organise a national event on this issue, i.e. Digital Storytelling for Health and Wellbeing. Please contact me (john.popham@johnpopham.com) if you want to be involved in this event, either as a service user, a health and care professional, a storyteller, or a technologist. Let’s build a movement which gets people’s health stories out to the world.

 

Men in Caring Professions

Our ageing population, plus some other factors, has placed a heavy strain on the UK’s social care system. And it has become increasingly apparent that a particular facet of this strain has been the lack of men prepared to work in frontline caring roles. It is not always the case, but in many instances people prefer to be cared for by somebody of the same gender, especially when that care is intimate in nature.

As you will know, I am passionate about storytelling as a device for influencing behaviour and shedding light on neglected issues. So I have teamed up with the National Care Forum and Skills for Care to begin some work on collecting and disseminating stories from men who work in caring roles. We will be helping them describe what they get out of their work, set out pathways into the professions and progression routes through them, and communicate the reasons why more men are needed in the sector.

Next Monday, January 18th, we will be gathering at Skills for Care’s London office to interview a number of men on camera. If you would like to be part of this day, please get in touch. But there are other ways of collecting stories, and, if you would like to tell your tale, but can’t get there next week, get in touch any way, and I’ll talk to you about other ways you can contribute.

Please help with this worthwhile initiative in whatever way you can.

A Manifesto for Social Tech in later life

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Yesterday I ran a second Connected Christmas event at Lower Edge Day Centre in Rastrick, Calderdale. There was a mixed group of some who were there for a second time, and some new participants. I hope I was able to open their eyes to some new possibilities. I know we all had a good time again, which is what it is really about. One lady told me she was really disappointed that there had been no carol services on the television over Christmas. Even though she has her own laptop at home, it had not occurred to her to go online to find any she could watch. I was able to help her find carol services on YouTube. One gentleman was an ex-chef. We chatted about his favourite dish, roast goose, and found a video of one of Jamie Oliver’s assistants cooking one. He put up a robust argument that her methodology was wrong.

As ever with these kinds of events I learn as much as the participants. One of the lessons was about degrees of digital exclusion. The lady with her own laptop is a retired accountant. She uses her machine for two main purposes, one is creating and modifying spreadsheets, which is a particular interest of hers, the other is for talking to her grandchildren in Australia via Skype. She sees her laptop as being for those purposes and has to be coaxed to explore its other possible uses. She is unlikely to appear on any official statistics about digital exclusion, she will be counted by the statisticians as being online, and it is great that she is able to see her grandchildren on the other side of the world while she talks to them, but, she is not exploiting the technology to anything like its full extent to improve her life.

The retired chef was an interesting case. I asked him if he used the internet at all. He replied “No. There’s just my wife and I, when we’re at home we don’t have any use for that kind of thing”. I asked if he had friends and family who used the internet. He said that he did, but they lived busy lives and would be too busy to talk to him. But, for me, that’s exactly the point. It use to be difficult to talk to people in distant locations; the internet has changed all that. But many have still not caught up with this fact. These means that a lot of older people are living lives remote from their families and support networks when they could be closely connected with them online.

It was recently announced that there will be free wifi in all NHS premises. This is a massive step forward in helping people who need healthcare to stay in touch with their networks and access information. But it really must not stop there. Huge numbers of socially isolated people spend time in social care settings, whether these be Day Centres, Care Homes, or other facilities. In the case of Care Homes, they probably spend a lot more time in such facilities than they do in NHS premises. Ask yourself how you would feel if you had no wifi or tech in your house. And then consider that 50% of older people currently spend at least some of their time in Care Homes. That could be you. What would you do if cut off from the ability to use online networks and services?

There is a dangerous assumption that social tech has passed older people by, and that they therefore have no interest in it. These assumptions are made by professionals, relatives, and by older people themselves. But my work, and that of others, has proved that the right approach can result in older people being persuaded that social tech both has benefits for them and can be mastered. This approach is about careful and patient exploration of people’s interests and how their lives can be enhanced; it is emphatically not about putting people in classrooms, on courses, or chasing numbers rather than wellbeing. And social technology can open up so many opportunities for older people including:

  • reducing social isolation
  • allowing people to tell stories about their lives, and about treatment and recovery
  • building confidence for the adoption of telehealth and telecare.

So, here is my manifesto for a social technology revolution to transform how technology supports health, wellbeing, and social inclusion among older citizens.

  1. Health and social care professionals need digital skills training themselves, and to understand how social technologies can improve the lives of the people they work with. The most enthusiastic of them need to become digital champions (example DigiWards);
  2. The commitment to free wifi in NHS premises needs to be extended to Social Care settings, including Day Centres and Care Homes (example Ashton Park Care Home);
  3. Events such as Digital Tea Parties and Connected Christmas need to be adopted as the approach to interest older citizens in social technologies;
  4. Recognition needs to be given that digital inclusion of older citizens is a long term process, not a one-off event;
  5. Schemes to recycle tablets to ensure older people can access social technologies at reasonable prices need to be developed;
  6. Research and development of online social networks for older people needs to be further explored;
  7. The benefits of social technologies for older citizens needs to be promoted to their relatives and families.

Please get in touch (john.popham@johnpopham.com) if you can help with any of these objectives.

Free Hospital Wifi – Nearly There!

Those who know me will be aware that I have been campaigning for free patient access to wifi in NHS hospitals for more than 10 years. For most of that time I felt like a voice in the wilderness. In recent years the support has gathered, and, in the last year at least, it has felt like there was a momentum behind the idea.

And now…. the moment has not yet arrived, but the door is open. Today, Martha Lane Fox published her “Digital Recommendations for the NHS“. Among the recommendations are that all health staff should have digital skills, AND, that there should be free wifi for staff and patients across the NHS estate.

I know from experience that there is a long distance between recommendation and implementation, particularly in an NHS which is actually made up of a plethora of autonomous units. But the recommendation is there, and it has a budget behind it.

So, maybe the Campaign has won. But still join it any way here to make sure the momentum is maintained.

We are nearly there!