Live-streaming a Patient Participation Group

I am very excited that this Thursday I will be undertaking what I reckon must be a world-first; I’ll be live streaming a Patient Participation Group (PPG). From 6:45pm, the Library House Surgery PPG in Chorley, Lancashire will be live streamed on the surgery’s Facebook Page. I have long been an advocate for live streaming as a means to involve people in the work of public agencies, and I am very pleased to be part of this groundbreaking opportunity to open up the PPG to those who cannot attend meetings.

I am happy to be working with Healthier Lancashire & South Cumbria and Redmoor Health on this initiative.  For any organisations who want to do something similar to engage wider audiences in their work, please get in touch.

Here’s my YouTube video trailing the event.

Thanks for reading.

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Many thanks.

 

 

Why I do Digital Storytelling

This is a brief post about why Digital Storytelling is so important to me.

I believe the world needs to change so that there are more opportunities for people to improve their lives, so that organisations are more responsive to people’s needs, and so that power structures are more representative of the diversity of society.

Every day I come across examples of great initiatives which are contributing to these objectives, but all too often they exist in isolation from each other and from policy and power mechanisms which could translate them into coherent social movements.

As an example, I have only today seen someone from a major organisation revealing in a tweet that they have only just become aware that Britain has a Housing Crisis.

The digital storytelling I do aims to shine a light on people and organisations doing great work to make the world a better place. The most powerful stories of all are those which enable the people who benefit from such work to describe and demonstrate the difference it has made to them.

Here are some examples:

Most people think that social care is in terminal crisis. While no one could deny there are huge problems, every day millions of people work to deliver the best care they can in challenging circumstances.

Policy makers have for years believed that Britain’s South Asian communities did not want professional social care organisations interfering in their family relationships. Probing beneath the surface can reveal the truth.

All too many people believe that a diagnosis of dementia is a death sentence. Events like the North Wales Dementia Meetups prove that people can continue to live fulfilling lives with the condition.

It is not true that older people don’t use technology. Some get great benefits from it, but most don’t. Here are some of those who do use it to enhance their lives.

And sometimes it’s all about having fun.

 

I’d love to help as many people as possible to use this kind of storytelling in their work. If I can help you, please get in touch

Technology Overcoming Rural Social Isolation

 

A couple of weeks ago I was working at a fabulous, inspirational event, the World Health Innovation Summit Fylde Coast (#WHISFC18) held at the Winter Gardens (above) in Blackpool. If you are not familiar with the umbrella body, the World Health Innovation Summit, check it out here, but, in summary, it is a rapidly growing movement of healthcare professionals and patients dedicated to putting people in control of improving their own health.

This is the first of a series of blog posts stimulated by the people I met and the initiatives I learned about at #WHISFC18.

Professor Niall Hayes is Professor of Information and Organisation at the University of Lancaster. As I was interviewing him for the video below, I became increasingly excited about what he was saying, as I recognised how it accorded with my own interests and ambitions. As part of an EU-funded project, Niall and colleagues have been developing an app called Mobile Age which aims to overcome social isolation among older people in rural South Cumbria. Here Niall talks about the principles behind this work.

 

I chatted further with Niall over lunch, and then he started to demonstrate the app, so I whipped out my camera and captured his explanation (see video below).

Mobile Age is a social connectedness app. It has been co-created with older residents of South Cumbria. At its core is open data about local events which people can use to plan their itinerary and ensure they can get out and about. It encompasses the ability to add events to a calendar as older people often enjoy constructing an agenda for the week and planning ahead.

Critical to the function of the app is an age-friendly map. This has been designed with clear lines which are more visible than some other mapping systems. The map shows benches, toilets (including available toilets within shops) and bus stops. This allows detailed journey planning to take place, including the ability to plan how to get to and from a venue before darkness falls.

Volunteering and educational opportunities are included, as well as links to vital services.

One of the key elements is the personal profile which allows the settings and itineraries to be saved. It also allows someone working remotely to add items into the profile, meaning that someone more tech savvy who is located distant from the user can help them populate their profile and plan their calendar.

I think this is a great initiative which deserves to be used more widely and replicated for use elsewhere. It epitomises my view that technology can be used to bring people together and to help them interact in the physical world, and that it is in no way de-personalising.

 

Added on 18th July 2018:

In the past couple of weeks I have done some work with the Mobile Age team undertaking video interviews to contribute to the evaluation of the programme.

Also, here is a great explanation of the approach given as part of a news item by ITV Border

 

 

Technology-Enabled Nattering

Last week I went to interview an older man for a project about technology-enabled social care. We chatted for ages. Not much of it was relevant to my commission, but that was fine, I got enough footage for the project, and I was happy to talk. The gentleman had some fascinating stories to tell. One of those stories was about how his adopted son in Australia had bought him an iPad which he uses to “have a long natter” with him, over Skype, twice a week. He has been doing for years, originally using the “Friends and Family” discount option on the telephone, then via Skype on a laptop and now on his iPad. He was explicit that these interactions enhance his life. He also said that the technology-enabled care platform his carers use has made his life better because it means that carers who visit him have to stay for the full-allotted time, and that means they are more likely to chat with him.

I am becoming more and more convinced that technology-enabled nattering is the way to introduce older people to the benefits of new technologies. Many older people love to chat, but don’t have the opportunity to do so often enough. They love to chat, but they don’t love to type. Video conferencing is the way forward.

 

Serendipity Screens

In the last few years when I have talked to some people about my work getting older people to access the benefits of being online, a number of them have told me that older citizens do not take to social media. This may be true, in some cases, although I have seen quite a few examples of grandparents linking with their families through Facebook and WhatsApp. It could well be that fewer members of the older generation want to type or tap messages that do their younger counterparts, but there is something that many want to do more of, and that is talk. Could it be that the thing that makes social media attractive to time-poor younger generations, the ability to exchange messages very quickly and frequently, is the thing that puts off older citizens as they want deeper, more meaningful interactions.

Now, I know I am making a lot of sweeping generalisations here, but please bear with me. The other day someone was telling me about their mother who had been complaining to them that their father had discovered Skype. She complained that he spent every evening talking “rubbish” loudly to his two sisters in different parts of the country while she tried to watch television in the next room. At Digital Tea Parties and Connected Christmas events I have often found that Skype (or other video conferencing apps) are popular, partly because they don’t involve people with potentially arthritic fingers having to type, but also because they can be seen as a direct extension of the kinds of interaction people are used to having with those around them every day.

I have long railed against the idea that older people need to be taught to use utilitarian software of the kind that is common in offices. But maybe we need to go further and explore in-depth what more use of video conferencing can do. If people are at home and lonely, why can we not make use of “always on” video and audio connections to ensure they always have someone to talk to?

Which also brings me to the idea of “Serendipity Screens”. A couple of years ago now I heard a radio programme during which the manager of a chain of theatres in the United States talked about how they had interactive screens in the bars connected to each other. The idea was to get people talking to others in a different theatre, who were likely to be watching a completely different production, about their experiences and impressions of what they were seeing. I think this is a brilliant idea to get people who would otherwise not have a connection with each other talking and cross-fertilising ideas.

So, I am looking for partners and funding to explore how we can make more use of video conferencing to connect older people together. And to install “Serendipity Screens” in places like Day Centres and Sheltered Accommodation to get people talking to each other across geographical and cultural divides.

Please get in touch if you want to work with me on this.

Reflections on the (first) Digital Flu Clinic


So, yesterday was the Digital Flu clinic at Seascale Health Centre, in West Cumbria. 392 people came through the centre during the day to get their annual flu jabs. 40 of these signed up to access their health records online for the first time, and 20 or so of them came to see me to get advice on their digital lives.

And there is the rub, and it’s why we were doing this really. Getting nearly 400 people in one place on one day is a rare opportunity in such a sparsely populated part of the country. The fact that such a small proportion of them wanted advice on digital issues shows the scale of the challenge. And it was not because they were sorted for that kind of thing. I engaged a lot of people in conversation about use of the internet. The vast majority of them said things like “I don’t do the internet”, or “I am not interested in that kind of thing”. They were mainly older people, and most of them live in areas where both landline and mobile signals are poor. This is a combination of factors which combines to produce a lack of awareness of the benefits of being online. And, in the cases where connectivity is poor, even if they are willing, they probably won’t be able to pursue their interest.

But, we always knew this was not going to be easy. This event is the start of a process. The surgery wants to interact with people online, to help people manage their health through apps and online processes, and to cut down social isolation by connecting people together. I also met with Councillor Keith Hitchen who talked about the frustrations of carers having to travel long distances to meet and attend events. The traveling cuts into the respite time they have, and they often have to miss large parts of events because of the time it takes to get to and from the venue. Online events and other interactions would be so valuable in these instances.

So, there are a number of strands we will be pursuing in the coming weeks, including looking at ways of tackling connectivity issues, working out the most cost-effective ways of ensuring that people can get independent advice on their digital needs, and working with local organisations to upskill them in areas such as video-conferencing and streaming meetings.

I’ll leave the last word to the couple I talked to about their use of FaceTime. “Do you use it to talk to family abroad?” I asked them. “Yes, only last night we used it to see our newly-born 6th grandchild in Toronto” they said. Don’t you dare try to tell me (or them) that new technologies are de-humanising.

Digital Flu Clinic

This Saturday (7th October) I will be undertaking what I think is another first, a Digital Flu Clinic. What’s that, I hear you ask?

Well, I’ll be working with Seascale Health Centre in Cumbria to provide digital advice to the people who come to the Flu Clinic there this weekend. Like most parts of the health infrastructure, the Health Centre is keen to encourage its patients to take up online health services and use health apps. Many of its patients are older, and that applies particularly to those who are eligible for annual flu jabs. These patients are less likely to be using online services, particularly as broadband and mobile connectivity are poor in the area.

Seascale Health Centre covers an area of some 350 square miles which has a population only of around 5,500. 450 people are booked into the Flu Clinic, so this is a rare opportunity in such a sparsely populated area to get such a large group of people together in one place. And it is an added bonus that most of the 450 will be older people.

I am really looking forward to helping people to get to grips with the issues holding back their digital lives. Solving those issues will have much wider benefits in their lives than simply interacting with health services. I also think we have hit upon a concept that could be replicated elsewhere. Who else is up for a Digital Flu Clinic?

Connected Christmas 2017

It’s that time of year. The time to think about making sure no one need be lonely at Christmas (or at any other time).

This year I want to do a number of things, principally, help bring a digital element to older people’s Christmas Parties, as I did here. I need partners and funding to make this happen. Please get in touch  if you can help.

But beyond that, I also want to develop a central hub for people who are offering food and companionship to those who would otherwise spend their Christmas alone. Here’s a great example of that http://www.independent.co.uk/news/uk/home-news/kebab-shop-feeding-homeless-elderly-turkey-christmas-day-birmingham-classic-fish-a7487946.html. Can we collect examples and pledges like this, and put them all in one place?

Come on, please get on board. This year, we can end loneliness at Christmas (yes, I know we can’t but that shouldn’t stop us trying).

 

 

 

Housing Vote 2017

This is the start of the Campaign to get Social Housing tenants in the UK to register to vote and to be enabled to make informed choices at the General Election on June 8th 2017.

Social Housing providers are prone to complain that Government doesn’t understand them, despite the resources they invest in lobbying. And yet, large proportions of their 4 million tenants don’t vote. Let’s change this. Tenants voting and making informed decisions has to be the way forward.

Please see my video below launching the Campaign, there will be more to follow on this. In the meantime, please contribute your ideas for the Campaign in the comments below to add to these ideas already raised:

  • Social Housing providers to close their offices on Election Day and to deploy staff in helping tenants to get to the Polling Stations;
  • Organising Housing Hustings in venues accessible to tenants (and live-streaming them for those who cannot attend);
  • Displaying information on how to register to vote in Housing Offices and on Housing Websites;
  • Displaying information on where Polling Stations are in Housing Offices and on Housing Websites:

Please share this post and the YouTube video below to get the Campaign going, and use the hashtag #housingvote17 on social media. I have also started a Patreon page at https://www.patreon.com/johnpopham to raise money for the Campaign and other things I do in the future.

Friendships not Transactions

I need to get this off my chest.

I couldn’t possibly count the number of times people have given me the excuse for not pursuing digital transformation that recipients of services would miss the personal touch. Indeed I am repeatedly told that, for many the regular interaction with their care worker / housing officer / other professional is their only human contact.

I have 2 responses to this argument.

The first is, why are we not making more use of technology to reduce isolation and increase human contact? First priority in this for me is to assist people to use social networking to make new friends who they can subsequently meet in person. Second priority is to connect people together online, whether it be via social media sites, or via video conferencing.

My second response is this. What has our society come to if the only personal contact people have is with those who are paid to deliver a service to them? This is not right and it should not be used as an excuse for holding back progress. I refer you back to my first response for how we should be dealing with this. Let’s help people make and maintain real friendships, not rely on perfunctory transactions for a semblance of human warmth.

Here’s Paro the robot seal which has proven really good at connecting with older people.