Dementia Choices Action Network (D-CAN) – Starting out using video to share

Last week I was very fortunate to be involved, as videographer and digital storyteller, in the inaugural National Assembly of the Dementia Care Choices Action Network (D-CAN). D-CAN brings together a number of stakeholder organisations with an interest in Dementia with NHS England and Improvement, Alzheimer’s Society, the Coalition for Collaborative Care and others, including people living with Dementia. A key aim of the network is to embed the principles of Universal Personalised Care (UPC) into the practice of supporting people with Dementia across the Health, Social Care, and voluntary and community sectors. D-CAN aims to provide a space wherein innovative practice and lived experience can inform practice at all levels.

i am pleased and excited that D-CAN has begun by recognising the power of video in disseminating messages and ensuring that members can learn from each other. Members want to break down the walls that exist between professional disciplines, between different organisations, between organisations and patients, and between people in the room at meetings and those who can’t be there. And it is this latter aspect that I want to talk about here. I have long believed that the public and non-profit sectors are failing to take advantage of the tools that the internet has given us to communicate beyond normal boundaries. Particularly where organisations are seeking to communicate messages and engage people in their work, it seems self-evident to me that using online video and social media will spread their reach far beyond the walls of the room they are in. That this is happening far too infrequently is a great source of frustration. Ian Donaghy, who hosted the Assembly, mentioned a number of online video resources during his comments, and he asked the audience who was aware of them. Very few of them were, and this is telling.

Stepping away from the direct field of Dementia for a moment, I am going to cite the case of Molly Watt. Molly is an inspirational young woman who lives with Usher Syndrome (which causes deaf / blindness). She has created her own Foundation, works as an accessiblity consultant, and uses online video and social media to document her life and how she uses new technologies to live as full a life as possible despite her limited vision and hearing. I know that she has provided inspiration for many others living with the same condition and given them confidence to overcome the barriers they face to achieving their ambitions. Peter Berry was diagnosed with Early Onset Dementia at the age of 50. He has made more than 100 of his weekly video diaries documenting the challenges of living with his condition. Usually his diaries are just him and his camera, but he has occasionally involved his wife, his daughter, and friends to give a perspective on what it’s like living with someone who has Peter’s conditon. A few years ago I was videographer at two North Wales Dementia Meetups. At the first event I interviewed a number of people in the audience who were living with Dementia. Several of them told me that their diagnosis had left them depressed and despondent. A year later, at the second event, some of those people were on the platform telling their stories and recounting how the first event had given them inspiration to turn their lives around and take positive actions to overcome the limitations of their condition.

OK, so the last example is about inspiration coming from the people you directly interact with, but there cannot be any denying that online video amplifies and spreads the ability to learn from how others do things. And that these lessons are all the more powerful when they come from people like you, living daily with the condition you live with than from official sources.

The fact that D-CAN is making some steps towards recognising that online video has a role to play in connecting people beyond physical meetings is, to me, a great, positive step forward. I believe we need to build on this step and roll the use of video into further meetings and into helping those living with Dementia to learn from each other. And we need to extend this practice into many other areas and many other conditions.

The growth of the internet has brought with it an explosion in the use of online video. More than a year ago, a report was published which showed that young people watch Netflix more than they watch the BBC. The millions of hours of online video which exist represent a major learning opportunity that, by and large, our public institutions are not making adequate use of. And they need to be seeding this resource with their own content that people can draw on. I am hopeful that D-CAN can be part of this process.

All the video from the first National Assembly of D-CAN can be viewed here. The video below, of the delegate interviews starts with Christopher Richmond, who lives with Dementia himself, telling his story. This is just the kind of thing I want to be able to support more of.

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Is Local Radio the Route to Digital Inclusion?

I’ve been doing increasing amounts of local radio in recent months. I’ve been appearing regularly on BBC Radio Leeds, on the Breakfast Show as the New Technologies “Professional” (usually a 10-minute slot) and, once a month, on the Big Yorkshire Phone-in, doing “Tech Hour” in the afternoon. I’ve also done a few slots this year on BBC Radios Sheffield, Derby and York. One of the reasons I like doing this is that I have become increasingly convinced that radio is the route to reach digitally excluded people. I have been searching for some time for tools to reach people who are not online at scale, when you are just an individual freelancer like me, and not a big organisation with a substantial budget. If you are reading this then you will be well aware of the powerful reach of social media and of tools like YouTube, but digitally excluded people don’t use these channels, so where can you reach significant numbers of them?

I don’t think it’s giving any secrets away to say that the demographics of the audience of BBC local radio stations tends to be weighted towards the older age group, and it follows that a proportion of them will be digitally excluded. The listeners’ questions when I am on the air tend to range between the very basic to the guy who wanted to ramp up the RAM on his Android phone. On one occasion, as I was leaving the studio after doing “Tech Hour”, the producer called me over to tell me she had a lady on the phone who hadn’t managed to get through while I was on air, but she wanted advice on where to get started on tech as she had never used a computer or smartphone. I suggested that she start with her local library; the lady didn’t know if she had a local library; the producer Googled it for her, and found that there was one, but it was open restricted hours and staffed by volunteers. I don’t know if it was anything I said on the radio that inspired her to want to get online, or that it just happened that she was spurred to do something by hearing the programme, but this is just the kind of person that I think local radio can reach.

I will continue doing what I can to reach out to people over the airwaves and, hopefully, to convince some that the world of digital technologies is not at all scary and will enhance their lives. I think radio is a powerful tool to reach digitally exluded people. If any other radio stations want to work with me on this, Please get in touch.

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Does Brexit Mean People are Getting to Know their Politicians Better?

I have often been shocked at how dis-engaged many people are from the political processes which influence their lives. I have frequently had conversations with people which reveal that they know little or nothing about the politicians who represent them, or the systems that control so many aspects of their lives.

As you probably know, I am a big advocate of storytelling, and, in the political context, I believe that those politicians who tell their own stories are more likely to connect with the public. I think there are a number of politicians who have done this well over recent years, but they are in a very small minority, and, to most voters, the back story of most of their representatives is a mystery. And yet, the majority of people (still, just about) cast their vote every few years, with, it seems to me, limited knowledge of who they are voting for.

And it works both ways, for every politician who has a heart-warming story to tell which is likely to endear them to voters, there are others whose story would be likely to turn people off voting for them if they only knew it.

And so to Brexit. I think Brexit has put more politicians in the limelight that has previously been the case, and this has made me wonder if it means that more of the public is getting to know them. Of course there are still those who take little notice of the news, and in particular political news, but I find it hard to believe that political news has not seeped into a lot more people’s consciousness over recent months.

So, has Brexit resulted in more people knowing who more politicians are, understanding what motivates them, and what their background is? If so, will it make any difference to people’s voting intentions?

What do you think?

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Could you Sponsor a Live-Stream?

Photo by Duncan Morrow

 

I am looking for sponsors. Does your organisation want to raise its profile in the Public, Charitable, or non-profit sectors?

As long-time readers of this blog will know, I specialise in high-quality, low-cost, live video streaming for non-profit organisations. Not all organisations in these sectors can afford even the low prices I charge to stream their events. So, are you a company or other organisation that wants to raise its profile in the sector? Why not consider sponsoring a live stream for a non-profit event? This can be an event  that your organisation is already present at, or it might be something you want your audience to be able to watch, or it could just be in a market where you want to get involved.

Please get in touch for a chat about how we might work together.

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While you are here, can I please ask you to take a minute to subscribe to my YouTube Channel here

If you would like to support me to do more of my work in using Digital Storytelling, social media, and video for social good, please consider making a regular contribution via Patreon or perhaps, just buy me a coffee here

27,000 people at a Local Authority Committee Meeting?

At the recent #NotWestminster event I asked if any local authorities were streaming meetings via Facebook. No one present knew of any, and quite a few people there expressed doubts that doing so would be a good idea as they would be fearful of the kind of comments that would come in during meetings.

And then, yesterday, my attention was drawn to a Facebook Live stream of Luton Council’s Development Control meeting, which was actually being done by the local BBC radio station, BBC Three Counties.

Now, this meeting was very high profile, as the main item on the agenda was a proposed development which included the building of a new stadium for Luton Town Football Club. But, nevertheless, it illustrates my point that this is something that local authorities should consider, as the level of engagement during the meeting would be higher than if they continue to stream via self-contained platforms.

Yesterday’s meeting was broadcast in two halves.

Part one is here. At the time of writing this, this video has had more than 19,000 views and attracted 1,655 comments.

Part two is here. At the time of writing this, this video has had more than 27,000 views and attracted 2,936 comments.

Now I know this meeting is a special case. But I still contend that using Facebook Live to stream Council meetings has to be tried as a way of engaging the public in council business. I can help you do this. If you’d like my help, please get in touch.

After all, there aren’t many Council committee rooms that could accommodate 27,000 members of the public.

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If you would like to support me to do more of my work in using Digital Storytelling, social media, and video for social good, please consider making a regular contribution via Patreon or perhaps, just buy me a coffee here

Live Streaming as a Fund-Raising Technique?

I don’t want to draw attention to it, so no links, but, did you know that the so-called “Yellow Vests” who have been protesting in pursuit of their aim of a “No Deal” Brexit in London and elsewhere in the UK have been live video streaming all their activities and using their live streams to solicit donations to their cause? As I understand it they have been raising substantial sums for their cause this way, and effectively funding themselves to spend their time on the streets of Westminster and other cities rather than doing another job.

This makes me think. Could we use this technique for a socially useful purposes? What do you think? Any ideas?

On a, slightly un-related note. I came across this video of a live-streaming “factory” in China. This is basically a large house where young women live and work shifts live streaming themselves. As I understand it there is nothing necessarily sexual in this, they effectively offer themselves as friends to lonely people, mainly young men, who are sitting at home in their bedrooms with no one else to talk to. And they make a living out of it. What do you think of this?

While you are here, can I please ask you to take a minute to subscribe to my YouTube Channel here

If you would like to support me to do more of my work in using Digital Storytelling, social media, and video for social good, please consider making a regular contribution via Patreon or perhaps, just buy me a coffee here

 

Lessons from a Connected Christmas

Is it too late to wish you a Merry Christmas? Well, I hope you had a good one.

I’ve been running a number of Connected Christmas events this year using the pretext of a Christmas party to try to turn older people on to the benefits of having new technologies in their lives.

This is always a difficult and challenging task, but I have to admit that this year it appears to have been particularly challenging; and I suspect I won’t do Connected Christmas in quite the same way in future years. I still want to use the opportunity of the approach of Christmas to highlight social isolation and loneliness amongst older people, and the role that new technology can possibly play in addressing this, but I am increasingly coming to the point of view that Connected Christmas needs to be a stage of the process which needs to start much earlier than Christmas.

This year the proportion of people I engage with who say “not interested….  new technologies are not part of my life” is higher than it has ever been in the past. Now I think a lot of it is part of a trend, in that it’s something that has been developing for years now, that the people who are truly digitally excluded are increasingly the hard-core who are super resistant to having new technologies in their lives. It’s not just a question of lack of skills and a lack of interest, it’s an active resistance. And I would like to add a word of congratulations here to the mainstream media. Thank you newspapers, thank you TV and radio stations, you have done a brilliant job of making sure a whole generation is excluded from the Internet. The amount of times I come across the comment that I don’t want anything to do with that because it’s all about fraud, or if I go on the Internet I’m going to get scammed.

But another possibly related issue that I keep coming across is older people who say to me that “that kind of stuff is the bane of my life. My children and my grandchildren are on it all the time and it means I can’t get them to talk to me”.  I try to counter that attitude by saying to people that, if you learn how to use those things yourself and you engage with them, then you will have something in common, you will share interests and you will be able to join in the conversations your family members are having online. I’m struggling to get that message through however, and I am increasingly coming to believe that digital technologies are increasing the generation gap because younger people are immersed in a world that their older relatives are not participating in, and, in many cases the older people are actively resisting opportunities to join in.

I find this frustrating and baffling to a degree. But I don’t think it is unsurmountable. A while ago, I wrote a piece about “Technology-Enabled Nattering” because I believe that what older people really want to do it chat with each other. And when I say “chat”, I mean it in the original sense of the word, not its internet incarnation which involves doing a lot of typing or key-pressing. That’s why I am still looking for funding (anyone, please?) to run some pilot projects which get people talking to each other on a regular basis via video conferencing. And, I want to throw out a challenge here. I think devices like Alexa and Google Home offer the opportunity for social networks to move beyond typing and photographic-based interactions and towards real conversations, involving voices not keyboards. That way older people need no longer be excluded from their younger relatives’ social media interactions. Done right, this approach could mean a real breaking down of the digital divide between the generations. What do you think of this idea, please comment down below.

I hope you have a great New Year. I leave you with a video I recorded just before Christmas, which encapsulates my idea that we should form support groups to crowdfund the purchase of tablets to connect lonely older people to friends and family. What do you think of that idea?

Christmas is the Season of Storytelling

Christmas is the season of storytelling. Of course, it is inspired by what many (not just John Wayne) consider to be the “Greatest Story Ever Told”. In recent years it has been the excuse for retailers and marketeers to role out their best efforts at story telling in the form of their Christmas adverts.

I came across the video below on Linkedin when it was shared by Linda Vernon. It’s a great piece of storytelling by the Chartered Society of Physiotherapists about the benefits of their members’ work, and it’s Christmas-themed. It rings all my bells as telling the stories of the benefits of the work of professionals who provide a vital service to our society.

 

Which brings me to #Brexit. Bit of a stretch, maybe, but bear with me. Yesterday, while making some lunch, I turned the radio on and I heard someone say, “the position on Brexit has changed because there are now so many more facts available”. That is, of course, patently absurd. There are no more facts about Britain’s relationship with the EU now than there were at the time of the Referendum in 2016. What has changed is that more people are aware of the facts, and that awareness, in some cases at least, has made them question the decision they made in 2016. I used to have a job which required me to sit on lots of different EU funding committees. Time-and-time again at these meetings I heard European Commission officials complain that the British partners were failing to meet the requirements to give due publicity to the fact that projects were funded by the European Union. Now I was convinced then, and I am even more convinced now, that this was a deliberate strategy by British governments, of differing political hues, to ensure that they, rather than the EU, were able to take the credit for the investments taking place. Is it any wonder, therefore, that the British public were unaware of the benefits of being part of the EU when they were deliberately obscured from them? And, as we are all too aware, in many cases, the areas which have seen the biggest EU investments are also those which voted most strongly for Brexit.

Stories are important, and the EU Referendum of 2016 was won by those who told the most compelling stories, while those on the other side were mainly those who had been suppressing stories about European successes for decades.

I rest my case about the power of storytelling. If I can help you tell stories about the work you do, please get in touch.

 

Live-streaming: Spreading Important Messages

Ignore the date on the photo (the camera had factory re-set itself)

Last Friday I live-streamed an event in London for charity Compassion in Dying. The event was called “I Wish I Had Known” and it presented findings from the results of assisting more than 25,000 people plan for the end of life.

There were some important messages here about how to ensure people’s wishes about their final days are put into action, and how everyone can have a good death. It certainly stimulated my thinking, and hopefully will have done the same for the 50 or so people in the room, and those watching on the live stream.

This is another example of how live streaming can spread important messages far beyond the room they are expressed in. The live video from the event, which was streamed via Twitter / Periscope is below. Please get in touch if I can help you achieve similar results.

https://platform.twitter.com/widgets.js

Engagement Through Live Streaming

I first started live video streaming events in 2010. Have experimented with live streaming as a fun exercise, I was prompted to take it up on a serious basis when a former employer complained about the cost of live streaming an event and I offered to do it for them at a much lower price.

Over the years I have evolved my practice, changed the way I do things, and improved the quality of the output. And I have also operated through a period when live streaming has become mainstream, and a thing that lots of people think they can do. This has resulted in a proliferation of live streams, some of which have been OK in quality, but many more of which have been blurry video with indistinct and/or echoey sound. It takes a lot of effort and some additional equipment to produce a live stream which people are likely to want to watch all the way through, and you can certainly forget it if the sound is poor.

One of the big game-changers on the live-streaming front has been the advent of Facebook Live. In many respects, Facebook Live is just another video platform, but something that makes it unique is that, for those organisations which have built communities on Facebook, whether through Groups or Pages, it adds an opportunity directly to address that community and engage them in events and other work.

Just recently I have live streamed two events for Rethink Mental Illness (formerly the Schizophrenia Foundation). The first event was a panel discussion to mark National Schizophrenia day. To date, the live video has been watched by more than 10,000 people. You can see this one here. And then, yesterday, I live streamed Rethink’s Members’ Day in Sheffield. Only a day later, the video from the morning session has had more than 3,500 views, and the afternoon workshop has over 4,400 views.

And in September, as part of Healthier Lancashire and South Cumbria’s Digital Transformation Programme, I live streamed a Patient Participation Group Meeting for Library House Surgery in Chorley. I think it is safe to say that everyone involved was bowled over by the fact that more than 500 people watched this meeting on the night, and that, within 48 hours that figure had gone up to more than 2,000. This is for a group that regularly attracts an attendance of fewer than 15 people.

To me, these projects have provided powerful evidence of the power of live streaming for social good organisations to engage people in their work. But I think one of the most prominent lessons is the use of live streaming to build on communities already built up on Facebook. Both Rethink Mental Illness and Library House Surgery already had thriving, interactive Facebook communities, and that greatly increased the reach of their live videos. Rethink were able to draw a wide audience into their events, and, for Library House Surgery, the live video drew people in to participate in development of their services who would not otherwise attend meetings.

The public and third sectors are populated with organisations which have missions to engage members or the wider public in their work. Social media and live video streaming, separately or combined together, have amazing potential to draw people into events and other aspects of an organisation’s work. But the live streaming has to be done well. Broadcasting low quality video, particularly if the sound is difficult to hear, could put people off rather than engage them.

I have a mission to use video and social media to help organisations engage with their client groups. One of my specialisms is high quality, but low-priced, live video streaming. I would love to work with more organisations to use live video to engage large audiences in their work. Please get in touch if you would like me to work with you.