It was a truly inspirational event, and I was very glad to play my part in helping people to get their own stories about living with their own Dementia and that of their loved ones out to the wider world. It was a really illuminating day, and it demonstrated that it is a much more effective methodology to get people to tell their own stories rather than giving the floor solely to the opinions of professionals. The material from the day is still in production, but I have taken the opportunity to present some snippets within this post.
I believe that the power of the internet to bring people with similar issues together, and the availability of digital tools to enable people to tell their stories are powerful mechanisms for assisting people to take control of their own health, influence their treatments, and increase understanding of the development of conditions. And it is true that, in some cases, digital inclusion is an issue in this respect as people need to be introduced to the internet and its possibilities, before it becomes a tool to improve their health and wellbeing.
I’ve got previous experience of this when I worked with Clinical Commissioning Groups in South and East Cheshire to collect some patient stories.
There is not enough of this kind of thing happening in my opinion. So I now want to organise a national event on this issue, i.e. Digital Storytelling for Health and Wellbeing. Please contact me (firstname.lastname@example.org) if you want to be involved in this event, either as a service user, a health and care professional, a storyteller, or a technologist. Let’s build a movement which gets people’s health stories out to the world.